Fear

My brother just shared this song with me.  Really really just perfect.  Thanks little bro ❤

 

Advertisements

No time like the present, I guess!

Jeez.  I don’t even know where or what to start with.  I haven’t written in so long and so much has been going on.  I have this tendancy to think every single damn detail of what’s been happening is crucial to share… it irritates most people and I used to think it was just one of my little annoying traits.  Turns out, my therapist says it is PTSD related.  My brain can’t tell the difference between essential and non-essential information.  So, bear with me.

I’ve been keeping my distance from WP because there were some big changes happening in my life, new realizations and issues, and it all was just too overwhelming and sometimes painful to deal with long enough to write about it.  But I love my blog, I love the people here, and it’s time to get back… tonight I decided, no time like the present.

I’ve written before about wanting to have kids but being unsure about many things in that regard due to my health.  Sorry if I repeat any health info, but I can’t remember right now what I’d shared and what I hadn’t.  Shortly after my surgery last year to have my illeostomy, I noticed my periods were abnormal and extremely painful.  I went to the OB/GYN here, and after some ultrasounds and MRIs she told me my fallopian tubes were about 5 times too large.  There was inflammation and some other things going on that basically meant the ONLY way I could possibly get pregnant was if the tubes came out, then we would have to try IVF.  But the advice, because of my previous difficult surgeries, was to have a complete hysterectomy when I had surgery.  There was no rush… I had time to consider some things.

A very dear friend of mine had offered to be a surrogate if I needed.  We already knew pregnancy would be difficult because of the continuing health issues and all the scar tissue.  So at this point, it became sort of the plan.  Both my husband and I felt though, that I had to have some improvement in my mental and physical health before we jumped into anything.  I’d looked at the numbers and I knew the cost of surrogacy would be an issue… but I clung to it anyway… because it just had to work out.  I could not imagine what my life and future would be without having a family.  And I wasn’t going to let money be the thing that kept me from it.

I was positive that with this plan, I’d get my damn butt off the couch and start to take care of life so that I could prove I could take care of a kid.  It seemed so obvious to me that if I wanted that the most, then it would be enough to overcome the difficulties I was feeling just with day to day life.  But it didn’t really work that way.  For months I sat surrounded with the same mess everyday telling myself I was going to get it together.  In the mean time, my periods got much worse, and so did my IBD.

I now have small bowel inflammation, though they don’t know for sure if it’s Crohn’s.  But I had to go back on Humira, and I started on Imuran (now I’m on 6mp)… these are chemo-type drugs and they warn extensively against getting pregnant.  But the drs said I should still be able to do IVF with the surrogate.  So I clung to it.  But as time passed and I watched my sister take care of her two daughters… as I tried to keep up with my neices for just a weekend at a time… I finally had to accept some things.  I wasn’t any closer to feeling healthy enough to take care of a baby, and the reality was that we were never going to be able to afford it.  And I realized at the same time that I had always known this… I’d just been unable to face it.

So we came to a decision that it was time to have the hysterectomy.  If I ever get as healthy as I’d like, then adoption may be in our future… but right now… it’s out of my hands.  I hated making the decision, but also knew without a doubt it was the right one.

Still… I grieved.

I had my hysterectory Oct 21st.  I was DETERMINED to be out of the hospital in 9 days or less.  I had already gotten tickets to see Bo Burnham in SLC on the 31st and I had been looking forward to it for MONTHS.  No way was I going to miss this show.  And the drs were sure it would be a 2-3 days stay… hmm but guess what.

My colorectal surgeon always referrs to my abdomen as being a very “hostile” environment.  They had 6 HOURS scheduled for my surgery because based on previous experience, she (my CRS assisted) expected to have to remove a lot of scar tissue.  It was still a mess in there, but they finished in 4 hours, so that was good.  And I was doing really well for the first few days.  Then, the night before I was supposed to be released, all hell broke loose.  I was up ALL night throwing up.  I don’t think I have ever in my life thrown up that much.  It just kept coming.  I didn’t sleep at all (neither did my poor husband!).  And it just kept going.  After that night, I couldn’t even keep the clear liquid diet down.  I’d developed what they call a post op ileus.  Which basically means my digestive system shutdown.  Not really a huge surprise.  6th surgery in 4 years and they’ve all followed this pattern, worse each time.  HOSTILE ENVIRONMENT!  (There were actually a lot of nightmarish aspects to this hospital stay but I’m not going to get into it all.)  Bottom line- I did get released on the 31st… but I still couldn’t eat or drink and hadn’t in days.  They sent me home on TPN- which is basically a “portable” IV (a PICC line) to “feed” me all my calories and such.

Needless to say I missed Bo Burnham.

I actually just came off TPN a couple of days ago.  Still having trouble eating regularly, but we decided it was time to try it.  Doing ok so far, still taking lots of nausea meds, sleeping a lot, etc.  But the last 2 months have completely passed me by.  I feel kind of lost right now.  I’ve been trying to catch up on other people’s blogs… but I still get really overwhelmed easy.  So, I’m sorry for such an extended absence.  I know it’s understandable, but I’m sorry for myself and all I have missed.  Gonna try to be back more often though.  (I know, I say this a lot… Doing my best!)

Still so fucking sad I didn’t get to see Bo.  I think that depresses me more than any thing else about that hospital stay.  Oh fucking well.  (I added that last fuck for you CC! haha)

 

Why do I keep using the #AlwaysKeepFighting hashtag…

Why do I keep using the #AlwaysKeepFighting hashtag? Welcome to the #SPNFamily…

A couple of months ago Jared Padalecki, one of the stars of Supernatural, started a campaign to raise money and awareness for charities like To Write Love On Her Arms.  He shared a lot about his own struggles with depression and suicidal thoughts, and his own need for strength and help.  It started with a tee shirt that said “Always Keep Fighting”.  The fandom really took to it.

AKF

For me personally, I came across the Always Keep Fighting campaign on a really really shit day.  It was really one of those days where I just was asking “What the hell am I here for?”  And those words, and his openness and sincerity, actually brought me to tears.  It was just one of those moments you get too rarely when you feel like the world is telling you something.  And I was like… “Man, Jared!  How did you know I needed this today?”

I’m actually sort of addicted to buying geek t-shirts.  It’s pretty much all I wear.  But I usually go for the subtle.  Not the whole- “celebrity on a t-shirt” thing.  Even Jared mentioned he wasn’t sure about putting his face on the shirt, but everyone convinced him it made it more personal (I agree). And… while I wasn’t sure if I would wear it (because- face on a t-shirt?), I knew I wanted to support it and TWLOHA.

It’s kinda become one of my favorite shirts.  When I’m having another shit day, wearing the shirt has reminded me of the message and kept me going.  And people have noticed it and either recognized it themselves or asked about it.  Which is awesome!  YES.  Let’s have a healthy dialogue about mental illness, suicide, addiction, depression, PTSD.  YES TO ALL THIS!

Since the original campaign ended, it has grown into a much bigger thing that both stars, Jared and Jensen Ackles, AND the fans are continuing to raise money and awareness for.  In the last couple of weeks, Jared has been experiencing his own personal crisis and the whole thing has just blown up in response (in a good way).  It’s actually kind of reminded me how awesome people can be.  The world is not full of hate and horrible things.  There is a lot of love out there.

https://fangasmthebook.wordpress.com/2015/05/19/what-the-spnfamily-is-all-about-always-keep-fighting-jared/

If you’re not familiar with these guys and this fandom, it might be easy to see this and think that it’s not sincere.  That it’s a bunch of hot guys getting their faces on t-shirts and making more money.  Publicity stunts.  But you wouldn’t have to look into things very far to realize these guys really just want to do a good thing and use the fan following they have to accomplish great things.

You might also find some weird stuff.  The fandom is known for some of it’s weird stuff.  Not gonna lie.  BUT the fandom really is also known for doing some really awesome things like this.  The official hashtag used to be “SPNfamily” (I don’t know, maybe it still is…) but #AKF and #AlwaysKeepFighting are really what it’s all about.  And hell yes, I will go down with this ship.  Even if I still appear to be a silly fangirl.  I don’t care.  This thing, this show, these people, this fandom, show love that gives me strength on days I’m not sure I can find it.   (Even though I will NEVER forgive you, writers, for that THING YOU DID IN EPISODE 10×21.  grrr… the only time I’ve ever hated Show :/  I’m still not over it.)

PHEW.  SO on that note, I’m gonna leave another reason I love this fandom.  I haven’t posted a fanvid in a LONG time guys.  And this one is technically a parody, so it doesn’t count.  And, true, I’m not sure you’ll really get it or love it if you don’t know the show, but… oh well.  It makes me happy 🙂 ummm spoilers for season 9 and 10 though, if that is important to you?

By the way, the cast cameos at the end- they heard about this video being made and totally volunteered to do it just because they knew the fans would love it.  No pay.  Just love.

And you know what?  Because I’m in such a giving mood… hahah… (actually, it’s probably just the late hour getting to me) but I’m gonna leave ya with one more gem.  But this is one that always gives me chills and makes me cry.  This song is sort of our anthem…

Ok.  Thank you.  Good nite.  I love you all 😉

“Always Keep Fighting” « TWLOHA

Older post, but one I needed to read tonight.  No joke, the day he started the tshirt campaign, those words literally kept me going.  Clinging to them again tonight.

Jared Padalecki Explains What Inspires Him to “Always Keep Fighting” « TWLOHA.

Cutting my hands up

How do you still break my heart after so many damn years?  I get it now… I keep asking you for something you just don’t know how to give me.  Or maybe you don’t have it to give at all.  Can I fault you for that?  I know I keep faulting myself.  WHY CAN’T YOU JUST SEE ME?  love me?  Does anybody really ever see anybody else?  I’m sorry it makes you feel so conflicted.  I only want to understand… and… perhaps see.  Don’t you get that all these years, I have only wanted to see you too?

Is it wrong to want so little, so much?  I don’t know.  I just know it tears me up every time I try to find that line, that thread that connects me to you.  And with every question I ask, you just think I’m trying to hurt you?  I don’t understand.  And you tell me it’s just me.  Why do I have to make it so difficult?  Why do I need to know?

Somedays I want to run so far far away… find that solitude, cut away my past.  What if its the only way I can find myself?  But the strongest sword in the world never seems to completely hack away that tie.

You say it like I have some devious plot- to throw a bomb out into the midst and see what kind of conflict I can stir up?  Don’t you understand, the bomb dropped forever ago.  Its the shrapnel in my heart I’m trying to clear out.  Pieces with your name on it… just… help me.  Please.

But you don’t know how.

=-=-=

This will probably make nearly zero sense.  But this is the song I’m feeling right now.  It’s about a different kind of relationship so I changed the words to my words down below.  Just seemed to fit for me.

All the world just stopped now.  So you say you don’t want to try to understand anymore

Let me take a deep breath…

if you need me, me and him’ll be hanging out with the dream king.

He says hi, by the way

It don’t believe it’s cause me and Charles Manson like the same ice cream.

I think it’s “that girl”. I know there are pieces of me you’ve never seen.  Maybe I’m just pieces of me you’ve never seen well.

All the world is all I am

The black of the blackest ocean and that tear in your hand

All the world is dangling dangling dangling for me darlin’

You don’t know the power that you have with that tear in your hand.

Maybe I ain’t used to maybes smashing in a cold room

Cutting my hands up every time I touch you

Maybe it’s time to wave goodbye now… time… to wave… goodbye

Caught a ride with the moon. 

I know you well, well better than I used to

Haze all clouded up my mind in the daze of the way it could’ve never been

so you say and I say… I know I’m full of wish

But I tell you there’re pieces of me you’ve never seen

I’m just pieces of me you’ve never seen…

All the world is all that I am

The black of the blackest ocean and that tear in your hand.

All the world is dangling dangling dangling for me darlin’

You don’t know the power that you have with that tear in your hand.

Think I’m on to something,…?

So much has changed this last week.  Internal changes.  Things shifting and circling.   It’s kind of been a lot of personal enlightenment, all at one.  Shifting, circling, new perceptions, understandings… SO MUCH.  And I really wish I could write about it right now.  But it’s so overwhelming I can’t even think to put the words to it,

I will say that I watched “The Fault In Our Stars” twice this week. and it has changed my life.  That sounds sort of cheesy if you’ve seen it… but it really really has.  I want to write, but  I’m still sorting.  Hopefully things settle a bit soon and I can try and make sense of it all.  I know it’s all good shifts, but it gives me anxiety anyway.  Been hard to keep my brain unoccupied enough to sleep because it keeps dwelling on this stuff.  But I think I’m on to something….!

Just a little something

So, husband had to go out of town for 2 weeks for work.  Which of course means I need to arrange babysitting for myself since I can’t stay home alone like that.  So I spent spent a couple days with the nieces (yay), then caught a ride to my parents house for the next couple of weeks.  In just the last couple days I have seen family and friends and have actually had a number of good experiences.

I’ve had a lot of things I’ve wanted to say.  As I’ve said before, I survive by trying to go unnoticed.  But I’ve been opening my mouth a lot the last couple of days, including a very loud conversation with my parents, grandparents and aunt about gay rights today.  I was pretty much on my own side, which I expected.  I did not expect any minds to change and no one was angry, but it felt so great to speak my mind so unexpectedly and to just feel honestly me!  I don’t know how anyone else felt about it later, and it kinda doesn’t matter?  Mostly, I’m just so high on being me for once.

Also, my aunt thinks I’m whimsical.  She meant it as an absolute compliment and I absolutely took it as one.  Really, one of the nicest things I’ve heard about myself in a long long time.

And the questions pour out…

So it’s been awhile since I had my last BIG anxiety attack (the kind where I want to crawl walls and rip my hair out.)  I don’t know why things were going well- had decided to attribute it to therapy.  And that probably is it.  BUT as I posted previously- I am having ANGER these last few days.  And I don’t deal well with anger.  I just don’t even know what to do with it.  Few things really even make me angry, but not feeling in control and feeling invalidated or used will make me angry.  My last post- the car smashing- that was about not feeling in control with my health issues, which I’ve already ranted about, so I won’t again.  (not right now, anyway!)

I had trouble sleeping that night, all the anger and anxiety.  Finally started to doze off a couple of hours before my dental appointment, but you take what you can get, right?  I kid you not, I had just relaxed when I got a bunch of txt messages.  From my brother.  Who I’m going to call Alec.  I ADORE my brother.  I can’t even tell you how awesome I truly think he is.  But he has the same capacity for just pure #$%#$^.

I crave closer relationships with all of my family.  Alec in particular is very distant.  He has told me in the past that he avoids me because he can’t deal with what happened to me (the assault.)  That hurts like hell, but I have to respect where he is too, ya know?  At the same time, he’s… not stable.  Just a few years ago, he stabbed himself in the stomach with a huge knife because he was angry.  I’m not really sure if that was a suicide attempt, but there have been those.  And he takes his anger out on himself.  I worry about him all the time, but never really know how he is doing because he tries to hide everything.  So Wed, when I got his txt asking for money because he’s going to get evicted… I was sick with worry and anger.  Anger because I know he is trying to manipulate me right now (this is the only time he makes contact) and worry because I don’t want to see him in trouble!  So- both anger triggers hit.  And everything just snowballed into that awful anxiety again.

How do you help someone you love that refuses to be helped?  I know this post probably makes no sense whatsoever.  I feel protective of my little brother and so frustrated at the same time that I have left a lot of things unsaid.  On the plus side- it sounds like he was able to avoid eviction for now.  So there’s some relief.  But sadness too.

This may seem so random, but I think of my brother when I hear this song.  It sings to my worst fears, but also my wishes to understand better what he is going through so I could help.  Except, if he doesn’t want my help… do I have any right to try to give that to him?   I don’t know any of these answers.  So here’s a song to ruin your day…

 

Enter your email address to follow this blog and receive notifications of new posts by email.

Join 70 other followers

Until Now

Life. Lessons. Love.

eurobrat

Surviving The Trumpages

markwatches.net/reviews/

Mark watches full runs of television series.

Budget Bytes

My stomach is full, and my wallet is too.

Sage Goddess

The path to healing is not a yellow brick road...

Praying for Eyebrowz

Doing the best I can with what I have

The Pursuit of Badassery

Live bold || Seek truth || Own your story || Never surrender || Be fucking brave.

Colitis To Ostomy

Punk Rock Ostomate

At The Dance Floor

you might find crazy, funny, beautiful & inspiring people and their dance moves

Gemineye Whole Health & Wellness

Holstic Lifestyle Made Real

Writing my Waves

learning to cope with mental illness

Runtu's Rincón

popular culture no longer applies to me

Cup of Mo

An irreverent celebration of coffee mugs and--well--irreverency.

Miss Apostate

"If a kid asks where rain comes from, I think a cute thing to tell him is, 'God is crying', and if he asks why God is crying, another cute thing to tell him is, 'Probably because of something you did'." ~ Jack Handey

Lumos.Nerd

fandom, funny, superwholock, assassin's creed, video games, nerd

Cobweb Queen

you were singing in your sleep

Old Road Apples

A Magnificent Fountain of Gurgling Wit, Wisdom, and Intriguing Insights. Some Other Stuff, Too.

Dearest Someone,

Writing about wellbeing