Blank

I was an empty canvas, I had finally started to paint.

At long last I’d found courage to take up the task,

And I did slowly learn to create.

 
Bit by bit, I shed the scales of fear, but I had only just begun.

A toe, just tipped in the water, years of hiding to be undone.

 
I might have been so beautiful, but you broke into my place.

And I never can stop asking “what else might have been built within my space?”

 
And so, a toe pulled back, hiding  again in fear.

Burrowing ever so deeper to find some safety, even still, after all these years.

 
And yes, I am enraged when I let my fear be known

How else should I expect to feel, when my life has never been my own?

 
You held a fragile piece of what just might have been,

And with a mighty force you shattered it, brought the creation to an end.

 
And so I stand here, a painting I cannot complete.

At times I want to take up the brush, but my will’s become so weak.

 

… A brush here, a dab there… still I paint the best I can…

With hope one day this painting can still reveal exactly who I am.

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and that’s what I got

A story, in two songs.

Hear me…

… or not.

Holy shit the WHY

Even if nothing else in this song made sense, WHY is perfection.  There are no other words.  Which is good, ’cause I’m still short on them.  Just holy shit, the WHY.  (Flaw- Fall Into This)

“Fall Into This”

Torn away from all that matters
And led by the wrong intentions
I know it wouldn’t be too easy, not yet
To go somewhere I’m afraid of
It’s made of…

Thoughts I’m receiving, making me say
That I know I’ll just be there once again
Lord I’m lost and then I’m tossed
Thoughts I’m receiving, making me say
That I know I’ll just be there once again
No…

Wrong, nothing really matters
If I was gone, would it make you any sadder?
I feel half as good as normal, you know
To steal – what to steal – what’s already taken
Here I go again…

Thoughts I’m receiving, making me say
That I know I’ll just be there once again
Lord I’m lost and then I’m tossed
Thoughts I’m receiving, making me say
That I know I’ll just be there once again

I think you know,
That you did this to me
I think you know,
That you did this to me
I think you know…
That you did this to me, you did this to me!

Why?!
You did this to me, I just want to know
Why?!
You did this to me
And it starts

God I’m losing sleep again
God I’m losing sleep again
And I feel my way
Thank you for making me talk
God I’m losing sleep again
God I’m losing sleep
And I failed, I think you know

All of these things…

So I’m heading out of town again to see the doctor and get another scope of my illeostomy to see if it is doing better.  I know already it’s not.  I’ve been throwing up more often, just randomly, and my stoma is still pretty raw and bleeding.

However, this morning I lay in bed thinking of so many things… the sad, the awful, the traumatic… the lonely, the losses of so many precious things… but also of the triumphant and the beautiful.

I like who I am- even if I am a beautiful mess.  And all that pain… well it’s part of who I am.  But so is all that beauty and wonder and color.  I forget so often… but this song reminded me.

(AWOLNATION “I Am”)

No time like the present, I guess!

Jeez.  I don’t even know where or what to start with.  I haven’t written in so long and so much has been going on.  I have this tendancy to think every single damn detail of what’s been happening is crucial to share… it irritates most people and I used to think it was just one of my little annoying traits.  Turns out, my therapist says it is PTSD related.  My brain can’t tell the difference between essential and non-essential information.  So, bear with me.

I’ve been keeping my distance from WP because there were some big changes happening in my life, new realizations and issues, and it all was just too overwhelming and sometimes painful to deal with long enough to write about it.  But I love my blog, I love the people here, and it’s time to get back… tonight I decided, no time like the present.

I’ve written before about wanting to have kids but being unsure about many things in that regard due to my health.  Sorry if I repeat any health info, but I can’t remember right now what I’d shared and what I hadn’t.  Shortly after my surgery last year to have my illeostomy, I noticed my periods were abnormal and extremely painful.  I went to the OB/GYN here, and after some ultrasounds and MRIs she told me my fallopian tubes were about 5 times too large.  There was inflammation and some other things going on that basically meant the ONLY way I could possibly get pregnant was if the tubes came out, then we would have to try IVF.  But the advice, because of my previous difficult surgeries, was to have a complete hysterectomy when I had surgery.  There was no rush… I had time to consider some things.

A very dear friend of mine had offered to be a surrogate if I needed.  We already knew pregnancy would be difficult because of the continuing health issues and all the scar tissue.  So at this point, it became sort of the plan.  Both my husband and I felt though, that I had to have some improvement in my mental and physical health before we jumped into anything.  I’d looked at the numbers and I knew the cost of surrogacy would be an issue… but I clung to it anyway… because it just had to work out.  I could not imagine what my life and future would be without having a family.  And I wasn’t going to let money be the thing that kept me from it.

I was positive that with this plan, I’d get my damn butt off the couch and start to take care of life so that I could prove I could take care of a kid.  It seemed so obvious to me that if I wanted that the most, then it would be enough to overcome the difficulties I was feeling just with day to day life.  But it didn’t really work that way.  For months I sat surrounded with the same mess everyday telling myself I was going to get it together.  In the mean time, my periods got much worse, and so did my IBD.

I now have small bowel inflammation, though they don’t know for sure if it’s Crohn’s.  But I had to go back on Humira, and I started on Imuran (now I’m on 6mp)… these are chemo-type drugs and they warn extensively against getting pregnant.  But the drs said I should still be able to do IVF with the surrogate.  So I clung to it.  But as time passed and I watched my sister take care of her two daughters… as I tried to keep up with my neices for just a weekend at a time… I finally had to accept some things.  I wasn’t any closer to feeling healthy enough to take care of a baby, and the reality was that we were never going to be able to afford it.  And I realized at the same time that I had always known this… I’d just been unable to face it.

So we came to a decision that it was time to have the hysterectomy.  If I ever get as healthy as I’d like, then adoption may be in our future… but right now… it’s out of my hands.  I hated making the decision, but also knew without a doubt it was the right one.

Still… I grieved.

I had my hysterectory Oct 21st.  I was DETERMINED to be out of the hospital in 9 days or less.  I had already gotten tickets to see Bo Burnham in SLC on the 31st and I had been looking forward to it for MONTHS.  No way was I going to miss this show.  And the drs were sure it would be a 2-3 days stay… hmm but guess what.

My colorectal surgeon always referrs to my abdomen as being a very “hostile” environment.  They had 6 HOURS scheduled for my surgery because based on previous experience, she (my CRS assisted) expected to have to remove a lot of scar tissue.  It was still a mess in there, but they finished in 4 hours, so that was good.  And I was doing really well for the first few days.  Then, the night before I was supposed to be released, all hell broke loose.  I was up ALL night throwing up.  I don’t think I have ever in my life thrown up that much.  It just kept coming.  I didn’t sleep at all (neither did my poor husband!).  And it just kept going.  After that night, I couldn’t even keep the clear liquid diet down.  I’d developed what they call a post op ileus.  Which basically means my digestive system shutdown.  Not really a huge surprise.  6th surgery in 4 years and they’ve all followed this pattern, worse each time.  HOSTILE ENVIRONMENT!  (There were actually a lot of nightmarish aspects to this hospital stay but I’m not going to get into it all.)  Bottom line- I did get released on the 31st… but I still couldn’t eat or drink and hadn’t in days.  They sent me home on TPN- which is basically a “portable” IV (a PICC line) to “feed” me all my calories and such.

Needless to say I missed Bo Burnham.

I actually just came off TPN a couple of days ago.  Still having trouble eating regularly, but we decided it was time to try it.  Doing ok so far, still taking lots of nausea meds, sleeping a lot, etc.  But the last 2 months have completely passed me by.  I feel kind of lost right now.  I’ve been trying to catch up on other people’s blogs… but I still get really overwhelmed easy.  So, I’m sorry for such an extended absence.  I know it’s understandable, but I’m sorry for myself and all I have missed.  Gonna try to be back more often though.  (I know, I say this a lot… Doing my best!)

Still so fucking sad I didn’t get to see Bo.  I think that depresses me more than any thing else about that hospital stay.  Oh fucking well.  (I added that last fuck for you CC! haha)

 

Hey Jupiter

Small step… write about one thing…

 

I’ve been listening to Tori’s “Boys for Pele” a lot lately.  It’s kinda always been a special one for me, though not easy to put into words why.  But it’s a cd I got shortly after the rape.  I wasn’t feeling a whole lot of anything then and what I was wasn’t great.  Something about this music though hit me in an emotional way most music hadn’t, and in a way that not much at that time really was.  I don’t understand about half the lyrics, but there is so much emotion that comes through in the music, it doesn’t even matter.

Kind of funny then, to read the wiki on this album (the whole page is rather interesting…):

“Two underlying currents run through Boys for Pele: exploring the role of women in both patriarchal religion and relationships. Amos had previously written songs in a religious and/or theological context (“Crucify” from Little Earthquakes (1992), “God” from Under the Pink), but her viewpoint takes a particularly feminist slant on this album. “The feminine part of God has been circumcised out of all religions… God (is) a patriarchal force, a very masculine energy, with the feminine having been subservient, either being the mother, the lover, the virgin, but never the equal, never to have the whole.”[15] “Muhammad My Friend”, the eighth track on the album, best represents this aspect of the album’s theme with the line, “It’s time to tell the world/We both know it was a girl back in Bethlehem…

…The album’s cover is a photo of Amos holding a large rifle, sitting in a rocking chair on the porch of an old wooden building. One of her legs is out of her pants and flung over the side of the chair. A snake coils around the chair and a large rooster hangs from the roof of the porch. The image is a nod to her song “Me and a Gun,” which appears on the album Little Earthquakes and recounts a rape she sustained. “Well, it’s [the cover of the album] a reference to Me and a Gun, a song I wrote that was on Little Earthquakes. And the idea that there’s a dead cock on my right and a live snake on my left. And the idea is that death and life… creation… what it’s taken me to get here with men, and I don’t want to be angry anymore. And you turn it over and you put the gun down, but I’m not pretending what it’s taken to get me here. But no more resentment.” [Live105 San Francisco (radio) – February 7, 1996] It was taken by Cindy Palmano in October 1995 in New Orleans.[21]

The first song from the album I ever heard and still a favorite:

 

“Hey Jupiter”

No one’s picking up the phone
Guess it’s me and me
And this little masochist
She’s ready to confess
All the things that I never thought
That she could feel

Hey Jupiter
Nothing’s been the same
So are you gay?
Are you blue?
Thought we both could use a friend
To run to
And I thought I wouldn’t have to be with you
Something new

Sometimes I breathe you in
And I know that you know
And sometimes you take a swim
Found your writing on my wall
You left my heart soaking wet
Boy your boots can leave a mess

Hey Jupiter
Nothing’s been the same
So are you gay?
Are you blue?
Thought we both could use a friend
To run to
And I thought you wouldn’t have to keep
With me
Hiding

Thought I knew myself so well
All the dolls I had
Took my leather off the shelf
Your apocalypse was fab
For a girl who couldn’t choose between
The shower or the bath

And I thought I wouldn’t have to be
With you
A magazine

No one’s picking up the phone
Guess it’s clear he’s gone
And this little masochist
Is lifting up her dress
Guess I thought I could never feel
The things I feel

Hey Jupiter
Nothing’s been the same
So are you gay?
Are you blue?
Thought we both could use a friend
To run to

Hey Jupiter
Nothing’s been the same
So are you safe?
Now we’re through?
Thought we both could use a friend
To run to
Hey Jupiter

nothing to see here, i guess….

5 minutes ago I had a bunch of things I thought I’d write about.  Now, I can hardly write a thing.  So many things.  This time of year is basically shit for me and this year has been worse than usual.  Change being the big theme lately.  So I’ve been in hiding.  Living in pretend world.  Thought I could come out for a minute and write but I find that in my heart right now, I really really don’t want to.  And I’m sorry.  This whole post is bullshit now.  I feel like I’ve wasted everyone’s time by even writing it.  But I guess since I bothered to write this much, I’m going to bother to post it to.  And go back to hiding.  Love ya all….

 

………….. I dreamed of you last night my friend.   You’d come back to be my ghosty best friend because you knew I just needed you.  I was so happy to see you, give you a big hug.  It broke my heart to wake up………..

I was an angel

In the land of Gods and Monsters
I was an Angel
Living in the garden of evil
Screwed up, scared, doing anything that I needed
Shining like a fiery beacon

You got that medicine I need
Fame, Liquor, Love give it to me slowly
Put your hands on my waist, do it softly
Me and God, we don’t get along so now I sing

No one’s gonna take my soul away
I’m living like Jim Morrison
Headed towards a fucked up holiday
Motel sprees sprees and I’m singing
‘Fuck yeah give it to me this is heaven, what I truly
Want’
It’s innocence lost
Innocence lost

In the land of Gods and Monsters
I was an Angel
Looking to get fucked hard
Like a groupie incognito posing as a real singer
Life imitates art

You got that medicine I need
Dope, shoot it up, straight to the heart please
I don’t really wanna know what’s good for me
God’s dead, I said ‘baby that’s alright with me’

No one’s gonna take my soul away
I’m living like Jim Morrison
Headed towards a fucked up holiday
Motel sprees sprees and I’m singing
‘Fuck yeah give it to me this is heaven, what I truly
Want’
It’s innocence lost
Innocence lost

When you talk it’s like a movie and you’re making me
Crazy –
Cause life imitates art
If I get a little prettier can I be your baby?
You tell me, “life isn’t that hard”

No one’s gonna take my soul away
I’m living like Jim Morrison
Headed towards a fucked up holiday
Motel sprees sprees and I’m singing
‘Fuck yeah give it to me this is heaven, what I truly
Want’
It’s innocence lost
Innocence lost

-Gods & Monsters by Lana Del Rey

I was going to write a narrative to go with each piece of lyrics, but then I decided the song spoke better for itself AND for me than I could… but tried to use color instead to match the emotion for me.  Did it work?  Well enough for me 🙂

I’m attaching a fan vid first because it’s where I discovered this song and I love the video.  HOWEVER, if you want to avoid spoilers for “Lost Girl” season 4 don’t watch this first version.  Watch the second instead.

Non-spoilery song with lyrics:

=-=-=-=

Since I haven’t posted many fanvids lately, and now I’m in a “Lost Girl” sort of mood, here’s one more for Kenzi, who is my heart as well… she don’t take shit from NO one…!  (Both fanvids were made/edited by The Suffering Fool)

Think I’m on to something,…?

So much has changed this last week.  Internal changes.  Things shifting and circling.   It’s kind of been a lot of personal enlightenment, all at one.  Shifting, circling, new perceptions, understandings… SO MUCH.  And I really wish I could write about it right now.  But it’s so overwhelming I can’t even think to put the words to it,

I will say that I watched “The Fault In Our Stars” twice this week. and it has changed my life.  That sounds sort of cheesy if you’ve seen it… but it really really has.  I want to write, but  I’m still sorting.  Hopefully things settle a bit soon and I can try and make sense of it all.  I know it’s all good shifts, but it gives me anxiety anyway.  Been hard to keep my brain unoccupied enough to sleep because it keeps dwelling on this stuff.  But I think I’m on to something….!

Tinman

Video

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